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Parent / Survivor & Sibling Meeting

Wednesday, June 23, 2010

 

Overview
ISPNO FAMILY EDUCATION DAY has been created “By Families - For Families” with an understanding that families of children affected by brain tumors are an integral part of the medical/family partnership. Knowledge is power and informed families become strong advocates and partners with surgeons, oncologists and related health professionals in providing their children with optimal care. This unique educational experience will provide parents and survivors aged 18 years and older with an opportunity to partner with international experts in the field of pediatric neurosurgery, neuro-oncology, endocrinology, radiation oncology, and neuropsychology.

Timetable:

Tuesday, June 22, 2010: "Meet and Greet"
17:00 Welcome drink and snacks at the office of the Austrian Childhood Cancer Organisation
Location: 1090 Vienna, Borschkegasse 1/7
Afterwards we will show you the most beautiful spots of the city by taking you on a sightseeing tour through downtown Vienna.
   
Wednesday, June 23, 2010: Parent, Survivor & Sibling Meeting
08:00 Sign-In
09:00 – 09:15 Opening: Dr. Irene Slavc & Anita Kienesberger
09:15 – 09:30 Speech by a brain tumour survivor (Julia Kanovsky)
09:30 – 10:30 Meet the Experts I.: „Acute Medical Care“
Neurosurgeons, oncologists and radiotherapists inform you about the latest treatment methods and answer your questions
10:30 – 11:00 Coffee Break
11:00 – 11:15 Speech by a sibling (Valerie Schmeiser)
11:15 – 11:30 Project presentation: Aftercare-Camps for siblings (Katrin Lüth)
11:30 – 12:30 Meet the Experts II.: „Aftercare Treatment“
Oncologists and endocrinologists report and answer your questions
12:30 – 13:00 Premiere of our brand-new educational film
13:00 – 14:00 Lunch Break
14:00 – 14:30 Project presentation: Making New Friends (Norwegian Project) & Cancer Beads (Sabine Karner)
14:30 – 15:30 Meet the Experts III: „Neuropsychologists and clinical psychologists“
Neuro- and clinical psychologists talk about the psychological effects of cancer throughout treatment and aftercare
15:30 – 16:00 Coffee Break
16:00 – 17:00 Meet the Experts IV: „Parents as Experts“
17:00 – 17:15 Closing words: Anita Kienesberger
19:00 Dinner at a typical Viennese tavern (Heuriger)

Speakers:
Erick Bouffet MD (Canada), Robert Butler MD (USA), Thomas Czech MD (Austria), Thomas Merchant MD (USA), Roger Packer MD (USA), Mag. Agathe Schwarzinger (Austria), Stephen Michael Shalet MD (UK)

Julian Schuller of the Austrian Childhood Cancer Organisation leads through the program.

Timetable (PDF)

 

Meeting Location:
The meeting will be held at the Austria Trend Hotel Savoyen Vienna. Vienna is a charming city in Austria. There are a myriad of wonderful family friendly activities and events in Vienna so we encourage you to join us for ISPNO Family Day and extend your stay.

 

Pre-registration is closed.
However, you may register on-site. We are looking forward to welcoming you to Vienna.
Your ISPNO-Team

 

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